my 1 year old daughter’s congenital heart defect

At the beginning of the pandemic, we were told that our second child (the first baby my husband and I would be having together) had a serious heart defect. We weren’t sure the severity until she was born and prepared ourselves for her first open heart surgery at a mere 5 months old. My husband and I were told that this would “make us stronger” and that this was “part of the plan.” Her surgery went better than expected, so we were told “we were lucky,” which we totally are, but living in the hospital with one daughter while the other (4 years old) wonders where we are at home for a month didn’t feel so lucky. I loved your book, especially the line “I am everyone’s inspiration and no one’s friend.” It has been the loneliest experience. I think a lot of people wanted us to snap out of our sadness/grief/fear after we got home from the hospital after surgery. I don’t know how to explain that it is a lifetime thing we check on regularly and hold our breath until each check-up is over, but I felt like I was getting hugged through the pages of your book. I felt so seen. And I got a tiny bit of hope that other’s get it, too. Thank you for who you are and sharing your story.