My Primary Immune Deficiency Disease

So I am tired, tired of fighting with insurance companies. Tired of spending time on hold instead of being present with my family, Tired of doing my part of informing and updating doctors/pharmacies about insurance changes only to find out the insurance dropped the ball on my life saving plasma product and now I have nothing…more fighting to do. Tired of stress. Tired of the uncertainty. Tired of people judging because taking more vitamins will surely make it better. Tired explaining over and over to doctors what my diagnose is and what it means…aren’t they the doctors. Tired of missing out on life because once again I can not physically make it out of the house, chair, bed…the fatigue is debilitating. Tired of pushing through life to only get resistance instead of someone opening a door. Tired of not being able to sleep because the medicines cause insomnia. Tired of fighting for everything we need. Tired of explaining to the nurses how to hook up my infusion pump…again aren’t they the nurses? Tired…life is just tiring …
BUT there are so many things to be grateful for!
The smell of a fresh brewed cup of coffee that my husband lovingly makes me.
The flowers as they gently blow in the breeze.
A caterpillar that turns into a chrysalis and then a Monarch.
Watching the Monarch emerge from it’s chrysalis!
The leaves changing colors in the Fall and so much more!!
So even though this is HARD I would not change it for the BLESSINGS that I have right in front of me and I am forever grateful for these every day moments.